Once again I had to have another line entered, this time for the heart scan I had on Monday. You guessed it after two more failed attempts in my arm the foot once again saved the day!
On Tuesday I awoke to the suprising yet wonderful news that they were going to Harvest!!! The bone pain from the injections had become intense so this was a relief to hear.
5 hours later after being attached to this very cool machine in a FREEZING cold room, they had collected 10 MILLION BEAUTIFUL STEMMIES!
On returning to my room I quickley developed a temperature of 38.2!
Lesson learnt – even if it’s cold don’t stop drinking water
TOLD OFF BY NURSES!!!
3.5+ Litres drunk VERY quickley!
Night of NO SLEEP, IV antibiotics, bloods taken, temp fluctuating between 37.8 & 38.4 = SCARY TIMES!
Be Reassured since then I have been drinking 4+ litres a day!
On Wednesday I harvested again; 8 Million Stemmies in just 2 hours!!!
This was a back up incase there bad bacteria from in the once previously harvested.
The Chemo Effect
To be honest the last 5 days have been really rough! Horrible nausea (luckily helped a bit by regular Iv shots), major issues with the body regulating its own Temperature – welcome to the world of hot flushes Becks:( And worst of all uncontrollable amounts of sleep. Quickly learnt I had to just got to go with it.
Throughout this time when awake I listened to music (yay for the new iPod!), while enjoying these two pieces made for me on the wall at the end of my bed. The wings by my good friend Claire Mitchell and the painting done by Corena Harris for me a couple of years ago. Thank you guys!!!
I couldn’t have done this last week without the support of the incredible nurses here & most of all my lil sister Pheobe! She has been the most incredible support emotionally as well as practically doing things like taking me done to the garden some days for ice blocks & some fresh air. Buying snacks for me & loads more. I feel so blessed to have her walking this journey with me. Thanks so much Febs!!!
And my white blood counts have increased again – as the doc says ‘we are on target’.
Yesterday they started giving me these two morning jabs. This is of the medication nuprogen which helps move my beloved stemmies from my bond marrow to my blood to prepare for harvest.
In 5 days (22nd of April), all going fine my stemmies will be harvested to then be conditioned for transplant. Eek it really is all happening, Thank you Lord!!!
INTO THE OPERATING THEATRE I GO …
2 familiar procedures later; firstly to have a contrast dye put through my Portacath to check that’s it’s working – TICK ALL CLEAR and ready to go.
Secondly to have a second line put in, this time through my right jugular. This will be used to harvest my stem cells & yay take bloods (no more Iv line issues or massive BRUISES)
During the procedure the spascity & painful cramps I’ve been experiencing increased so yay they sedated me & put me on oxygen. They are also going to increase my morning dose of the muscle relaxing meds I’m on which will hopefully make life easier.
AND THE CHEMO FOR HARVESTING BEGINS!
Bizarre how the all get gowned up (even my sis had to leave the room) yet they put it in me?!?!?!
22 hours of chemo drip to come – this is it folks!
Think my my face says it all; been a long hard day (starting at 4am for breakfast which consisted of 3 crackers & a milo). Dinner was really yum though, chicken tikka with rice & cooked veggies – much appreciated after a day of mostly fasting;)
So over the next few days my white blood count & platelets will drop, they will then start me on 2 days of injections to get the stem cells to move out of my bone marrow to my blood and then it will be STEMMIES HARVEST DAY!!!
In the meantime I rest/sleep & let the chemo do its thing:D
10th April: 9am Admission, room ready at 4.30pm & it all begins!
I had my portacath accessed then after an hour of my amazing nurse trying to get a line into a vein she went for the foot! With great success however it was flowing very slowly so took 30 mins to get enough blood. I now have a line inserted until Monday morning. In the meantime Im on a drip of fluids to hydrate me/keep the blood pumping.
This morning after a surprisingly good night sleep, despite the air conditioning being turned off for 5 hours (for maintenance) in 29deg heat. I woke early to nurses visits to take obs, do an echocardiogram & to my surprise a chest X-ray while still in bed! This place is so technically advanced including the hospital band which needs to be scanned for everything (see photo above). Good news delivered this morning that all my blood tests taken for nearly everything you can imagine have come back normal.
What happens next …
Unfortunately due to some concerns about my existing portacath (as it won’t give blood back anymore (this isn’t new as its still used for iv meds back home) so they now won’t begin the Chemo until Monday once my new line has been put in to my chest. Better to be safe then sorry. This means that we have been put back a few days as after I receive the chemo they will need to start the harvesting process which includes a few days of injections first. But hey any medical process involves being flexible;) Ive waited three years to get this far so whats 2 more days!
“Set your goals high, and don’t stop till you get there”- Bo Jackson
6.35am and the plane lands in this wonderful country; Singapore . Where my sister & I will call home for the next 9-12 weeks. 9 – 12 weeks of working at my new job: kicking the MS in the butt, recovery & rehab; MY GOALS which I know I can do! It was another great 11hour flight, this time on a newly refitted plane on which I slept most of it, thank you Lord! Once we settled into our hotel room, had sleeps and sorted out our next few days we ventured out to ‘din tai phung’ for the best feast of dumplings.
MY LAST SUPPER!
As of my admission into hospital this Friday (10th April) & first dose of chemo on Saturday I will be on a Neutropenic diet for the next 6-12 months. It was such a treat to indulge in this yummy food before then:).
Philippians 4:13 13 “I can do all things through Him who strengthens me”.
A HUGE thanks to Bryce Wastney for capturing & editing this – the first step of the BIG journey ahead of me. Something I wanted to do here with some of my friends.