Category Archives: My Stem Cell Transplant Journey

THE UNKNOWN

 

I never imagined I would be here in these circumstances…

I thought, as I laid there once again surprisingly experiencing the most incredible peace & overwhelming sense of thankfulness.

I was so overtaken by these feelings that I quickly realised that it was loud, I mean really loud!!! This was familiar but ohhh so different…

8days later results received- NO NEW LESIONS!!!

2 Years in Remission & many more to come

 

 

 

 

‘Stemmies’ are stemcells

2 days ago( the 14th May)  it was my stemmies 2nd Birthday or you could say 2 year anniversary.

It has all worked, why am I surprised?

 

 

 

 

 

These last 2 years

Have involved recovery from the most medically challenging procedure I have ever been through let alone imagined!

I’ve also experienced some of the most stressful & difficult situations I’ve ever been through, including having to find a new home after 13 years in what I thought was the best house ever. This involved searching for 5 months to find a new one which I NOW LOVE

 

 

 

 

Watch this space

Hey In the midst of all this I just had 2 years without experiencing ANY RELAPSES OR DETERIORATION!

Today I had my annual appointment with my amazing Neurologist, We finished a VERY positive appointment of discussing all the close calls Ive had with death due to all the DMD’s Ive been on  with the clinical Tests – which resulted in the best scores ever!!!

 

Now to Him who is able to do far more abundantly beyond all that we ask or think, according to the power that works within us

Ephesians 3:20

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A New Year – New Beginnings!

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14th Feb will be my 9 month anniversary since I got my stem cells…

Where did that time go?

So grateful for having the transplant last year, most brutal thing Ive ever done BUT definitely the best thing Ive ever done!!!

Timing was sooo perfect, it would cost us double if I had gone this year!

 

Well I am now officially in REMISSION, loving life & looking ahead…

Getting wonderful feedback from my incredible medical professionals here & in Singapore!

Never been so busy which I love.

New exciting Projects ahead, WATCH THIS SPACE!

Enjoying the fruits & doing things I couldn’t before.

Rediscovering what I love; cooking, gardening & spending time with wonderful people.

NOTHING IS GOING TO STOP ME!

Isaiah 55:8-9

 My intentions are not always yours,
        and I do not go about things as you do.
    My thoughts and My ways are above and beyond you,
        just as heaven is far from your reach here on earth.

 

INTERNATIONAL HEADLINES

Recently you may of seen a clip on the news about the stem cell transplant being done in the UK with much success … This is exactly the same as what I had done as well as thousands all around the world for the last 2o years – great that its finally being taken seriously!

Am excited that it is becoming a REAL option for others with relapsing remitting MS.  PHARMAC the drug days are nearly over!!!

25th August: Home Sweet Home!

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After 17 years of being diagnosed with MS (multiple sclerosis), and receiving many types of medications, finally the MS HAS BEEN STOPPED FROM PROGRESSING ANY FURTHER!!! We’ve seen complete reversal of some symptoms, significant decrease in others and even the disappearance of some old lesions (scars) on my brain – yay!

As I have had to battle this disease for soooo long there is continued damage that I live with. My body is only at the recovery process from the transplant meaning that I’m learning to adjust to life living in a wheelchair (for now at least).

I’m really appreciative of all the others who are also post having the transplant, and are helping me with the recovery journey which will be for the next 9-15 months.

A huge thank you to all the doctors and nurses at both Singapore General Hospital and Nelson Hospital for looking after me during this huge event in my life. I am so grateful for the care I have received in order for brighter things ahead. A big thank you also to friends and family (especially my amazing sister Phoebe) here and all over for your love and support – it means the world to me!

As I walk this recovery process I continue to trust the Lord & hold onto His promises knowing that He is the faithful Healer. Let the next chapter begin!

4th June: THE FINAL DISCHARGE

The Final Day!!!

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What a relief to have the jail band off or as they call it ‘my rolex’ – yeah right!

 

 

 

The room – my life in 28 days…

High Temperatures

Convulsing

Infusions

Mild phenomena

Stemmies Transplanted!!!

Hospital HIGHLY overcooked food

Really ugly pyjamas – peach is defintley NOT my colour;)

Visitors

Amazing doctors & nurses

Lots of new friends made

 

 

 

BUT I DID IT!!!

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One of my amazing nurse friend Penny & I huddled up under the freezing aircon in our apartment. (I still have to be in an 18deg temp, seems sooo wrong!).

It was sad to say ‘see you again soon’ to such an incredible inspiration throughout this journey in Singapore.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

28th May: 21 days…

TWENTY ONE DAYS IN ISOLATION COMPLETE!!!

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Wow can’t believe it I have manages to do 21 days in isolation!

 

Most of it incredibly sick on high dose Chemo – SLEEPING, vomiting & more sleeping.

 

 

 

 

Special Family Times

 

During the last 2 weeks I have had my Dad here to visit.

 

While he was here I didn’t see much of my sister – now I know why! Thank you Febs you are amazing!