After 17 years of being diagnosed with MS (multiple sclerosis), and receiving many types of medications, finally the MS HAS BEEN STOPPED FROM PROGRESSING ANY FURTHER!!! We’ve seen complete reversal of some symptoms, significant decrease in others and even the disappearance of some old lesions (scars) on my brain – yay!
As I have had to battle this disease for soooo long there is continued damage that I live with. My body is only at the recovery process from the transplant meaning that I’m learning to adjust to life living in a wheelchair (for now at least).
I’m really appreciative of all the others who are also post having the transplant, and are helping me with the recovery journey which will be for the next 9-15 months.
A huge thank you to all the doctors and nurses at both Singapore General Hospital and Nelson Hospital for looking after me during this huge event in my life. I am so grateful for the care I have received in order for brighter things ahead. A big thank you also to friends and family (especially my amazing sister Phoebe) here and all over for your love and support – it means the world to me!
As I walk this recovery process I continue to trust the Lord & hold onto His promises knowing that He is the faithful Healer. Let the next chapter begin!
I am now in Nelson Hospital in isolation & about to embark on Rehab.
Its sooo good to be home in Nelson, around familiar surrondings & seeing all my wonderful friends (that aren’t sick).
Unfortunately I don’t have reliable wifi access here so not sure how much I’ll be able to update this blog.
The Final Day!!!
What a relief to have the jail band off or as they call it ‘my rolex’ – yeah right!
The room – my life in 28 days…
Hospital HIGHLY overcooked food
Really ugly pyjamas – peach is defintley NOT my colour;)
Amazing doctors & nurses
Lots of new friends made
BUT I DID IT!!!
One of my amazing nurse friend Penny & I huddled up under the freezing aircon in our apartment. (I still have to be in an 18deg temp, seems sooo wrong!).
It was sad to say ‘see you again soon’ to such an incredible inspiration throughout this journey in Singapore.
TWENTY ONE DAYS IN ISOLATION COMPLETE!!!
Wow can’t believe it I have manages to do 21 days in isolation!
Most of it incredibly sick on high dose Chemo – SLEEPING, vomiting & more sleeping.
Special Family Times
During the last 2 weeks I have had my Dad here to visit.
While he was here I didn’t see much of my sister – now I know why! Thank you Febs you are amazing!
A note from my amazing sister
The last 36 hours have been a reminder of how rough this treatment is. It was expected this would be the hard part for Becks, but it’s still a fight to stay calm when it becomes a reality. The staff and nurses at the hospital however are pretty amazing, and we are confident with Becks in their care.
To recap and expand on where we are in the treatment: Becks is currently in isolation for the second part of the process (the actual transplant), followed by a recovery period. With transplant day labelled as ‘Day 0’, here’s the outline of this stay:
Day -6: Admission, line inserted ready for chemotherapy
Day -5: to Day -2: Four days of chemo to wipe out the immune system
Day -1: Rest Day
Day 0: Transplant day to insert new stem cells (and Dad arrived, woo!)
Day 0-10/12: High risk period due to having a low blood count and no immune system, all precautions taken to avoid risk of infection. Expected that side effects hit from day 3 or 4. Body expected to strengthen from second week
Day 7-14: One in ten chance of an MS flare up for a week
Day 14-21: Discharge expected within this time depending on recovery
We have just started Day 7.
Becks has had the expected side effects – intermittent fever, nausea, vomiting, diarrhea, and mouth sores. This has meant a lot of lying with a few ice packs on her body and a paper bag always by her side. She has been given lots of medication to help subside the effects, and sedatives also. For a couple of days she couldn’t hold any food or liquid down, so would suck ice cubes when she could. She has started back on soft, bland foods since though.
The unexpected bumps – two nights ago she was running a fever and as part of this experienced convulsions. Then yesterday she was given a platelet transfusion (because her bloods were too low), but unfortunately had a reaction and experienced shortness of breath. From what we understand Becks had also contracted an infection of some sort (we’re still waiting for clarification around this), but they caught it early and put her on antibiotics and oxygen straight away. As I mentioned before, she’s being well looked after and closely monitored.
So, all in all, a predicted storm. However, we know that we’re supported by so many family and friends back home and around the world, as well as friends and the church we are connected to here in Singapore. Most of all we know we are in the hands of an almighty God, and he will not fail us.
Thank you for your continued love and support, it means so much to us!
The Awaited Day
The special vessel vessel that contained my stemmies.
Me sedated on a very emotional day.
ITS MY NEW BIRTHDAY!
A gorgeous cake from ‘Awfully Chocolate’, even though I didn’t get to partake it was great seeing my dad, sister, friends & staff gratefully enjoying it.
My honorary guests; dad, sister Febs, Gracie & Kelly in party mode,