The last 2 months sure have consisted of a number of incredible mile stones…
13th May – 12month MRI scan
After having had so many of these & having been through the transplant this was sooo easy! I was so excited we even forgot to put ear plugs in – I very quickly realised though!
Once again we had issues with not being able to access a vein, this time my Portacath for the contrast dye for the last part … But hey no worries been here a million times!
In the past I’ve slept through them but not today; I was so excited & expectant that the scan would prove what I already knew!
NO RELAPSES SINCE JAN 2015
14th May – 1year since I had my transplant!
What an experience to reflect on, for me that day was a bit of a drugged out emotional blur…
I couldn’t believe that the day had come after 5 years of trying to be treated & my amazing Dad was arriving to visit me. Nothing like having your dad involved in the thick of it – thank you so much Dad!
While I had the privilege of receiving 6MILLION of my own good stemmies the others celebrated with me with what I understood was a really good cake! UNFORTUNTLEY I was neutropenic & not holding down any food so had to sit back & enjoy them and the staff indulge.
14th May 2016 – PARTY TIME!!!
It was with much delight that I celebrated this milestone with lots of friends over drinks & desert at one of my favourite local Cafes Paulas Plate.
I really did get to indulge this time, although this time it was in a much more sophisticated venue!
It was precious to be able to do this with some of the amazing people I have the honour of calling my friends.
A week earlier to the day I had celebrated my 36th birthday but this indeed is my new birthday & worth celebrating so much more ha especially as turning 1 sounds a lot more youthful!
26th May – NO CHANGE!
On the 26th my Dad & I met with my amazing neurologist & guess what there was no New lesions/advancement reported on my latest MRI scan!
Not a suprise to me esp as I haven’t had any relapses since Jan 2015, the majority of my symptoms have disappeared and NO NEW ONES!!!
My Nuerologist continued to say that if nothing happened during the next 2 years that I would be discharged from there services!!!
I know lots of other transplant receipents who 18+ years post the MS is still in remission, so expecting 2 years to be a piece of cake!
I will miss my annual catch up with my Nuero though!
4th June – 1 YEAR SINCE DISCHARGE!!!
Unbelievable that today 1 year ago I was discharged from Isolation!
High dose chemo
Ipod (there is an outside world)
Hardest thing I’ve ever done yet the best!
Enter – with MS
Exit – without MS
I certainly couldn’t or wouldn’t want to have…
Done this amazing journey without my incredible lil sister & friend Phoebe!
*Flights *Tears *Laughter *Special moments * Prayers *Never the same *Weights *FOOD *She survived *Words of encouragment