Talk about MILESTONES …

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The last 2 months sure have consisted of a number of incredible mile stones…

 

 

 

 

13th May – 12month MRI scan

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After having had so many of these & having been through the transplant this was sooo easy! I was so excited  we even forgot to put ear plugs in – I very quickly realised though!

Once again we had issues with not being able to access a vein, this time my Portacath for the contrast dye for the last part … But hey no worries been here a million times!

In the past I’ve slept through them but not today; I was so excited & expectant that the scan would prove what I already knew!

NO RELAPSES SINCE JAN 2015

 

 

 

 

 

14th May – 1year since I had my transplant!

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What an experience to reflect on, for me that day was a bit of a drugged out emotional blur…

I couldn’t believe that the day had come after 5 years of trying to be treated & my amazing Dad was arriving to visit me. Nothing like having your dad involved in the thick of it – thank you so much Dad!

 

 

 

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While I had the privilege of receiving 6MILLION of my own good stemmies the others celebrated with me with what I understood was a really good cake!  UNFORTUNTLEY I was neutropenic & not holding down any food so had to sit back & enjoy them and the staff indulge.

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14th May 2016 – PARTY TIME!!!

 

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It was with much delight that I celebrated this milestone with lots of friends over drinks & desert at one of my favourite local Cafes Paulas Plate.

I really did get to indulge this time, although this time it was in a much more sophisticated venue!

It was precious to be able to do this with some of the amazing people I have the honour of calling my friends.

A week earlier to the day I had celebrated my 36th birthday but this indeed is my new birthday & worth celebrating so much more ha especially as turning 1 sounds a lot more youthful!

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26th May – NO CHANGE!

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On the 26th my Dad & I met with my amazing neurologist & guess what there was no New lesions/advancement reported on my latest MRI scan!

Not a suprise to me esp as I haven’t had any relapses since Jan 2015, the majority of my symptoms have disappeared and NO NEW ONES!!!

My Nuerologist continued to say that if nothing happened during the next 2 years that I would be discharged from there services!!!

I know lots of other transplant receipents who 18+ years post the MS is still in remission, so expecting 2 years to be a piece of cake!

I will miss my annual catch up with my Nuero though!

 

 

 

 

4th June – 1 YEAR SINCE DISCHARGE!!!

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Unbelievable that today 1 year ago I was discharged from Isolation!

28 DAYS

High dose chemo

Nutropenic

Phenomia

Blood infusion

Plasma infusion

Massive reactions

Oxygen

Ipod (there is an outside world)

Hardest thing I’ve ever done yet the best!

Enter – with MS

Exit – without MS

 

 

 

 

 I certainly couldn’t or wouldn’t want to have…

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Done this amazing journey without my incredible lil sister & friend Phoebe!

*Flights    *Tears    *Laughter   *Special moments    * Prayers   *Never the same   *Weights     *FOOD     *She survived    *Words of encouragment

 

 

 

 

 

 

 

 

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6 thoughts on “Talk about MILESTONES …

  1. Sue

    Becks , you are amazing and your family also… Im sorry I havent been able to be there to celebrate with you and your friends all the wonderful milestones that are whizzing past..!! What a journey your are on and such an inspiration to us all.. you take the good and the bad with such a positive attitude, your faith just shines.
    Pete and I always wish you all the best life has to offer and knowing you, whatever situation you find yourself to be in you will use it to spread your love and faith far and wide.! Hope to see meet up soon. x… Sue

    Like

    Reply

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