22nd July: Not the results I wanted


On Monday the 22nd of July I find out that the scan showed NO ACTIVE LESIONS! I can’t believe it as it’s like I could ‘taste’ having the transplant …


After seeing the scans (LOTS of scarring from previous relapses) it was explained to me that it was a rebound I had experienced as a result of coming off the tysabri for 2 months rather then a relapse- I couldn’t believe it!


To say I was gutted was an understatement!!!


Since then I’ve been on nothing drug wise (there’s nothing available for me) and again im WAITING FOR A RELAPSE!

Once again I hold on to Isaiah 41:10, this time in a different context, keep busy doing life as much as I can, trusting in The Lord and WAIT.