17 May 2018

“MRI brain scan taken on the 11th May 2018.

This was compared to a previous MRI from May 2017.

I am pleased to note that there were no new white matter lesions identified….

There was also no reported abnormal enhancement…..”

Yours sincerely,


Consultant Neurologist








Happy Place Discoveries Photo

Isaiah 43:19

19 “Behold, I will do something new,
Now it will spring forth;
Will you not be aware of it?
I will even make a roadway in the wilderness,
Rivers in the desert.


2017-2018: This period  was wonderful yet not without its challenges…..

Involving the recent HOT summer we experienced, infections & sicknesses etc.

As well as being confronted with other opinions, living with Neurological damage YET I KNEW & HAD FAITH that after 24 years despite these things the MS had been stopped.….












  1. 1.

    recognition and enjoyment of the good qualities of someone or something.

    “I smiled in appreciation”


    valuing, respect, prizing, cherishing, treasuring, admiration, regard, esteem, high opinion

    “appreciation of literature comes only from first-hand study of the works of great writers”




I have experienced so many wonderful things that Im so grateful for, here are just a few;

Driving again or should I say learnt to drive a hand controlled car!

Best illustration Ive heard is imagine driving with just your left foot…..

nb. NO ONE OR THING WAS INJURED during this process or has since.

This has enabled me to once again have my independence back (ha as long as its not raining – who enjoys sitting on a wet seat all day!).

Being a 7 seater I can; bundle my nieces in the back to venture out for ‘aunty treats’.

As well as this I have been able to offer its use within my volunteering role with Red Cross supporting former refugees settle into a brand new life in Nelson, New Zealand.

Im looking forward to being able to use it in other areas Im involved with & any other opportunities that open up in the future…..













I am  incredibly grateful for the continual help with meeting my needs as well as the odd gratefully unexpected surprises.

Regular travel to Wellington for meetings to take part on a national Board I am on, a major plus of this is seeing & spending time with my wonderful family there.

Big needs being met by local & national; trusts & foundations.









I never imagined I would be here in these circumstances…

I thought, as I laid there once again surprisingly experiencing the most incredible peace & overwhelming sense of thankfulness.

I was so overtaken by these feelings that I quickly realised that it was loud, I mean really loud!!! This was familiar but ohhh so different…

8days later results received- NO NEW LESIONS!!!

2 Years in Remission & many more to come





‘Stemmies’ are stemcells

2 days ago( the 14th May)  it was my stemmies 2nd Birthday or you could say 2 year anniversary.

It has all worked, why am I surprised?






These last 2 years

Have involved recovery from the most medically challenging procedure I have ever been through let alone imagined!

I’ve also experienced some of the most stressful & difficult situations I’ve ever been through, including having to find a new home after 13 years in what I thought was the best house ever. This involved searching for 5 months to find a new one which I NOW LOVE





Watch this space

Hey In the midst of all this I just had 2 years without experiencing ANY RELAPSES OR DETERIORATION!

Today I had my annual appointment with my amazing Neurologist, We finished a VERY positive appointment of discussing all the close calls Ive had with death due to all the DMD’s Ive been on  with the clinical Tests – which resulted in the best scores ever!!!


Now to Him who is able to do far more abundantly beyond all that we ask or think, according to the power that works within us

Ephesians 3:20

Talk about MILESTONES …


The last 2 months sure have consisted of a number of incredible mile stones…





13th May – 12month MRI scan


After having had so many of these & having been through the transplant this was sooo easy! I was so excited  we even forgot to put ear plugs in – I very quickly realised though!

Once again we had issues with not being able to access a vein, this time my Portacath for the contrast dye for the last part … But hey no worries been here a million times!

In the past I’ve slept through them but not today; I was so excited & expectant that the scan would prove what I already knew!







14th May – 1year since I had my transplant!


What an experience to reflect on, for me that day was a bit of a drugged out emotional blur…

I couldn’t believe that the day had come after 5 years of trying to be treated & my amazing Dad was arriving to visit me. Nothing like having your dad involved in the thick of it – thank you so much Dad!





While I had the privilege of receiving 6MILLION of my own good stemmies the others celebrated with me with what I understood was a really good cake!  UNFORTUNTLEY I was neutropenic & not holding down any food so had to sit back & enjoy them and the staff indulge.





14th May 2016 – PARTY TIME!!!




It was with much delight that I celebrated this milestone with lots of friends over drinks & desert at one of my favourite local Cafes Paulas Plate.

I really did get to indulge this time, although this time it was in a much more sophisticated venue!

It was precious to be able to do this with some of the amazing people I have the honour of calling my friends.

A week earlier to the day I had celebrated my 36th birthday but this indeed is my new birthday & worth celebrating so much more ha especially as turning 1 sounds a lot more youthful!








26th May – NO CHANGE!


On the 26th my Dad & I met with my amazing neurologist & guess what there was no New lesions/advancement reported on my latest MRI scan!

Not a suprise to me esp as I haven’t had any relapses since Jan 2015, the majority of my symptoms have disappeared and NO NEW ONES!!!

My Nuerologist continued to say that if nothing happened during the next 2 years that I would be discharged from there services!!!

I know lots of other transplant receipents who 18+ years post the MS is still in remission, so expecting 2 years to be a piece of cake!

I will miss my annual catch up with my Nuero though!







Unbelievable that today 1 year ago I was discharged from Isolation!


High dose chemo



Blood infusion

Plasma infusion

Massive reactions


Ipod (there is an outside world)

Hardest thing I’ve ever done yet the best!

Enter – with MS

Exit – without MS





 I certainly couldn’t or wouldn’t want to have…


Done this amazing journey without my incredible lil sister & friend Phoebe!

*Flights    *Tears    *Laughter   *Special moments    * Prayers   *Never the same   *Weights     *FOOD     *She survived    *Words of encouragment









A New Year – New Beginnings!


14th Feb will be my 9 month anniversary since I got my stem cells…

Where did that time go?

So grateful for having the transplant last year, most brutal thing Ive ever done BUT definitely the best thing Ive ever done!!!

Timing was sooo perfect, it would cost us double if I had gone this year!


Well I am now officially in REMISSION, loving life & looking ahead…

Getting wonderful feedback from my incredible medical professionals here & in Singapore!

Never been so busy which I love.

New exciting Projects ahead, WATCH THIS SPACE!

Enjoying the fruits & doing things I couldn’t before.

Rediscovering what I love; cooking, gardening & spending time with wonderful people.


Isaiah 55:8-9

 My intentions are not always yours,
        and I do not go about things as you do.
    My thoughts and My ways are above and beyond you,
        just as heaven is far from your reach here on earth.



Recently you may of seen a clip on the news about the stem cell transplant being done in the UK with much success … This is exactly the same as what I had done as well as thousands all around the world for the last 2o years – great that its finally being taken seriously!

Am excited that it is becoming a REAL option for others with relapsing remitting MS.  PHARMAC the drug days are nearly over!!!

25th August: Home Sweet Home!


After 17 years of being diagnosed with MS (multiple sclerosis), and receiving many types of medications, finally the MS HAS BEEN STOPPED FROM PROGRESSING ANY FURTHER!!! We’ve seen complete reversal of some symptoms, significant decrease in others and even the disappearance of some old lesions (scars) on my brain – yay!

As I have had to battle this disease for soooo long there is continued damage that I live with. My body is only at the recovery process from the transplant meaning that I’m learning to adjust to life living in a wheelchair (for now at least).

I’m really appreciative of all the others who are also post having the transplant, and are helping me with the recovery journey which will be for the next 9-15 months.

A huge thank you to all the doctors and nurses at both Singapore General Hospital and Nelson Hospital for looking after me during this huge event in my life. I am so grateful for the care I have received in order for brighter things ahead. A big thank you also to friends and family (especially my amazing sister Phoebe) here and all over for your love and support – it means the world to me!

As I walk this recovery process I continue to trust the Lord & hold onto His promises knowing that He is the faithful Healer. Let the next chapter begin!